When Monica and David were born in the s, children with Down syndrome had a life expectancy of under Many parents were told by well-meaning doctors that their children would never walk, talk or lead meaningful lives. Their generation defied those predictions, and now this Miami couple, both in their 30s and expected to live well beyond their 60s, has shattered misconceptions about the lives of those who have intellectual disabilities. Because the couple addresses having children, the film also is "definitely a catalyst
Severe down syndrome adults dating discussion," she said.
The film is the first by director and producer Alexandra Codina, 32, whose universal love story grew out of her close relationship with her cousin Monica, In intimate footage and personal interviews, she explores the challenges the family faces, trying to give the couple independence but, at the same time, shield them from a world that might reject them.
Their cognitive abilities are varied -- some are profoundly incapacitated while others are very high-functioning -- but their need for love, affection and acceptance is as ordinary as all adults. They have an increased risk for heart defects, respiratory and hearing problems, Alzheimer's disease, childhood leukemia and thyroid conditions.
But because many of these conditions are now treatable, most now lead healthy lives. And now, with more social acceptance, a small, but growing number of those adults are taking marriage vows.
Even if the mainstream is still fighting against the stigma, they have to work harder to live an ordinary life. Monica and David live in a separate apartment under the close supervision of her mother, Maria Elena, and stepfather, Bob, who try to respect their privacy while helping to structure their daily lives. But even those close to the couple struggle to view them as fully actualized adults.
Monica and David are adults capable beyond traditional expectations, but they can also be childlike and need assistance. At 16, Codina began working at a social program for adults with intellectual disabilities with her cousin Monica.
Six years apart, they were close growing up. The film opens just as the two prepare for their lavish, storybook wedding. It's my life, to be with my husband forever. While Monica, then 33, and David, then 27, are capable beyond expectations, their parents have trouble letting go. And yet, because we want to protect them so much, we are typically the first ones who treat them poorly by subconsciously denying them their rights to have a normal life.
As daily life unfolds, Monica's mother manages the couple's lives, teaching them to cook and even walking in to the bedroom to wake them each morning.
Their routine is disrupted by a move to a bigger home and David is diagnosed with diabetes. At an emotionally-charged point in the film, Monica writes a letter to her biological father, upset over his absence in her life.
It was an incredible moment to hear her express what she might be feeling. And she tells us exactly.
Monica and David are physically demonstrative, but the director keeps their private life private. But I don't feel it's my place to divulge their relationship, and they didn't want to share it with the world. The couple talks about having children and their parents do not overtly forbid it. In the past, sexuality was not considered an issue because of the inaccurate belief that what was then called mental retardation left people with Down syndrome in permanent childhood, according to the NDSS.
But today, doctors know that children with Down syndrome develop much the same way as their peers, and have all the same sexual feelings Severe down syndrome adults dating needs for intimacy.
Experts recommend sex education -- learning about reproductive health, birth control and sexually transmitted diseases. Monica's mother addresses the issue of parenthood in the film: They are very much like everyone else. And so I think parents need to be as aware of the contraception needs of a person with an intellectual disability as to the needs of their other children". Although their love is genuine, the consideration of children seems "irresponsible," she said. Beck's son Christopher lives in a group home Vermont and has a girlfriend, but she worries that marriage might be too much for the couple to handle.
As for the film's couple, "It's lovely that they could get married and be happy together," said Beck. Their parents are giving them all the good parts and none of the responsibility. Few statistics exist on adults with Down syndrome -- even on important questions like their sexuality, according to Emily Perl Kingsleya veteran writer for Sesame Street and an activist for those with disabilities. Biologically, women can ovulate, though only about 50 percent are fertile.
Information on men is less clear, mostly based on studies of boys in institutions in the s that concluded they were sterile. According to NDSS, there have been two documented cases where the paternity of a man with Down syndrome was confirmed. Kingley's son Jason, now 36, exceeded all expectations, appearing at the age of 3 on the pioneering children's show.
But when he was born inKingsley's obstetrician urged her to institutionalize the baby. He told me to
Severe down syndrome adults dating home and tell my friends he died in childbirth.
Many children of that era lingered in institutions, dying of respiratory illnesses before they were 5, because they were never given antibiotics. Others died of heart conditions before Severe down syndrome adults dating medical advances. An estimated 30 to 50 percent of children born with Down syndrome are born with heart anomalies, according to Kingsley. But a social worker suggested a new concept, "early intervention," and Kingsley decided to keep Jason at home.
There, he thrived, learning to read and appreciate classical music, as well as getting a high school diploma. With a co-author, he wrote "Count Us In: Growing Up With Down Syndrome.
Today, Jason is in good health and lives in a structured group home with two roommates who also have Down syndrome. Though he is "damn bright," according to Kingsley, he has "significant gaps" in knowing how to "manage in the world.
While his dream to direct animated films probably ambitious, Jason's work in a mail room is "well below his capabilities," she said. Not too much else is offered.
After a sexually "complicated" relationship with a girlfriend, Jason had a vasectomy. But that's not true. As for Monica and David, who are now 38 and 32, they have embraced the film about their now-five-year marriage.
They are natural-born stars. But really, I think it's because they feel acknowledged and understood by the camera; and now by the audience.
The couple serves as volunteers in the Take Action program that accompanies the film online.
The film will also be accessible to those who are blind and vision impaired as ACB Radio live streams the audio with full audio description of all visual Severe down syndrome adults dating. Codina hopes that viewers and listeners will look beyond policy and language changes when it comes to understanding the adult world of people with disabilities. Monica and David are married and share all its love and intimacies. Relentless California wildfires leave 82 dead, almost unaccounted for.
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But her year-old son Otto has Down's syndrome and has had trouble it a few months ago and since then I've talked to Otto about
Severe down syndrome adults dating in an adult way. When he gets back home I've lined up a few dating agencies for him to join. .
with severe back pain Television legend was transported to hospital. I went to high school with this girl who has down syndrome, never talked at all. I think when dating, you kinda need to be on the same intellectual.